一个创新的教育计划,为青少年在家中进行肠胃营养,以"过渡"到成年期
Olivier Goulet1, Elise Payen1, Cécile Talbotec1
1Division of Pediatric Gastroenterology and Nutrition (DPGN), Necker-Enfants Malades Hospital University of Paris Cité-UFR Paris Descartes, Certified Expert Center for Home Parenteral Nutrition, Reference Center for Rare Digestive Diseases in Children Paris France.
青少年治疗教育计划 (ATEP) 成功培训了青少年在家庭亲肠营养 (HPN) 上,以独立管理他们的护理. 这项计划提高了他们的自我护理技能和接受他们的状况,使未来的规划成为可能.
科学领域:
- 儿科 儿科 儿科
- 胃肠病学 胃肠病学
- 青少年医学 青少年医学
背景情况:
- 越来越多的需求转向成年人护理的青少年在家中进行亲肠道营养 (HPN).
- 需要专门的项目来为年轻患者提供自我管理技能.
研究的目的:
- 报告青少年治疗教育计划 (ATEP) 的初始会议.
- 评估该计划在为青少年准备独立HPN管理方面的有效性.
主要方法:
- 该ATEP涉及三个5天的会议,重点是导管护理,PN连接/断开,并管理并发症.
- 包括心理,社会和同行支持,以及实践技能培训.
- 在没有父母监督的情况下进行计划后的旅行评估了自主性.
主要成果:
- 16名青少年 (13-17岁) 参与了这项研究,所有青少年都长期接受HPN治疗.
- 项目结束后,11名青少年实现了完全自主,4名青少年实现了部分自主.
- 青少年和家长对ATEP的评估是积极的.
结论:
- ATEP的整体,多专业的方法促进了自我护理技能和改善了疾病接受.
- 青少年获得了管理HPN和规划未来的信心.
- 团队凝聚力和实践培训是计划成功的关键.
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