能够做自己:从智力障碍自闭症成年人的角度了解自主和自主支持
Jackie Ryan1, Heather M Brown1, Anne Borden2
1University of Alberta, Canada.
概括
具有智力障碍的自闭症年轻人可以通过支持来增加自主权. 关键因素包括选择,控制,个性化沟通和安全的环境,使自我表达和独立成为可能.
科学领域:
- 神经发育障碍 神经发育障碍
- 关于残疾人的研究.
- 自闭症谱系障碍研究研究
背景情况:
- 患有智力障碍的自闭症年轻人经常经历自主权的减少.
- 适当的支持系统对于提高这一群体的自主性至关重要.
- 社区合作的研究对于相关性和影响至关重要.
研究的目的:
- 探索和定义增强自闭症年轻人智障自主性的支持需求.
- 从自闭症个体的角度来看,确定促进自主性的关键因素.
- 为家庭,支持人员和护理人员提供有效的自主支持策略的信息.
主要方法:
- 这是一项与5个自闭症社区合作伙伴共同设计的定性研究.
- 与八名自闭症的智力障碍的年轻人进行了深入的讨论,包括口头和非语言沟通.
- 利用小组的艺术项目和游戏,多个会议的格式来促进沟通.
主要成果:
- 参与者将自主性定义为"做自己"的能力.
- 三个主要的支持领域出现了: (1) 确保选择和控制, (2) 促进个性化沟通方法, (3) 建立安全的环境.
- 参与者强调了自我表达和个人代理的重要性.
结论:
- 自闭症的智力障碍年轻人渴望并可以实现更大的自主权.
- 选择,控制,量身定制的沟通和安全是支持自治的基本要素.
- 这项研究为增强智障自闭症个体的独立性和自决提供了可行的见解.
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