报告定性研究中的伦理考虑,利用社交媒体数据对公共卫生保健:范围审查
Yujie Zhang1,2, Jiaqi Fu1,2, Jie Lai1,2
1Nanfang Hospital, Southern Medical University, Guangzhou, China.
Journal of medical Internet research
|May 17, 2024
概括
在使用社交媒体数据的定性健康研究中,经常忽视道德考虑. 研究需要改善关于道德认可,知情同意和用户隐私的报告,以确保负责任的数据收集和分析.
科学领域:
- 公共卫生研究 公共卫生研究
- 数字伦理数字伦理
- 定性方法论 定性方法论
背景情况:
- 社交媒体平台越来越多地被用于对公共卫生态度和经验的定性研究.
- 然而,使用社交媒体数据进行此类研究的伦理考虑仍然被低估.
- 这突显了在数字时代理解和实施伦理研究实践的关键差距.
研究的目的:
- 系统地审查在公共卫生中使用社交媒体数据的定性研究中报告的伦理考虑.
- 评估道德认可,知情同意和隐私措施的记录程度.
- 为未来的研究确定需要改进的伦理报告领域.
主要方法:
- 对2010年至2023年5月期间发表的同行评审英语研究进行了全面的范围审查.
- 研究通过搜索主要数据库 (PubMed,科学网,CINAHL,Cochrane,Embase) 来确定,并通过灰色文献来补充.
- 数据提取的重点是报告道德认可,知情同意和隐私,遵循PRISMA-ScR指南.
主要成果:
- 在包括的108项研究中,只有59.3%的人报告道德认可,45.3%的人提到知情同意,只有12.9%的人明确获得了.
- 虽然70.3%的人使用用户内容,但报告获得同意的方法和转述引文以保护隐私的方法往往不足 (16%的转述引文缺乏方法细节).
- 报告伦理认可在不同国家 (P=.02) 和研究类型 (P<.001) 中观察到显著差异.
结论:
- 在使用社交媒体数据的定性健康研究中,报告道德方面的考虑往往是不充分的.
- 迫切需要在引用用户引文时更加谨慎,并详细报告获取知情同意和转述技术.
- 建立一个关于利用互联网社区数据进行健康研究的伦理准则的国家共识至关重要.
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