对各种绝症患者的症状负担和影响因素的比较分析
Genevieve Ataa Fordjour1, Amy Yin Man Chow2, Victoria Ka-Ying Hui1
1The Jockey Club End-of-Life Community Care Project, The University of Hong Kong, Hong Kong, China.
Annals of palliative medicine
|May 21, 2024
概括
绝症患者因流动不良和家庭焦虑而经历严重的痛苦. 疾病类型和年龄是影响症状负担的关键因素,需要量身定制的终身护理.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 老年学是一门学科.
- 症状管理 症状管理
背景情况:
- 绝症患者在身体,心理和精神领域面临复杂的痛苦.
- 现有的研究往往侧重于特定的疾病,在理解不同患者群体的痛苦方面存在差距.
- 这项研究解决了评估和了解各种各样的绝症患者群体中的症状负担的需要.
研究的目的:
- 评估各种绝症患者的症状负担的强度.
- 探索影响症状负担感知强度的因素.
- 为了确定针对性终身护理干预的关键痛苦症状.
主要方法:
- 采用香港EoLC干预参与者的基线综合息护理结果表 (IPOS) 数据进行的横截面研究.
- 使用统计分析,包括相对重要性指数 (RII),ANOVA和通用线性回归 (GLR).
- 样本包括各种疾病组中的1,549名绝症患者.
主要成果:
- 发现了最令人痛苦的症状:行动不便 (RII=64.4%),家庭焦虑 (RII=63.5%),难以分享感情 (RII=61.4%),软弱 (RII=58.1%),缺乏和平 (RII=50.7%).
- 在八个疾病组中发现了身体和情绪症状负担强度的显著差异 (P<0.05).
- 疾病类型和患者年龄是影响感知症状负担强度的最重要因素.
结论:
- 流动性低下和家庭焦虑是主要令人痛苦的症状,需要在终身护理中给予注意.
- 疾病类型和患者年龄是定制护理以适应绝症患者的关键因素.
- 个性化护理策略至关重要,特别是对于非癌症诊断和老年患者,以改善生活质量.
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