了解经验,未满足的需求和与中风后失语护理相关的优先事项:基于经验的共同设计项目的第一阶段
Lisa N Anemaat1,2, Victoria J Palmer3, David A Copland4,2
1Queensland Aphasia Research Centre, School of Health and Rehabilitation Sciences, The University of Queensland, Herston, Queensland, Australia l.anemaat@uq.edu.au.
BMJ open
|May 21, 2024
概括
患有中风后失言症 (PWA) 的人及其支持者需要更好的沟通支持和获得心理服务. 改善医疗保健专业人员培训和区域服务是提高中风和失语症护理经验的关键.
科学领域:
- 神经学 神经学
- 语音语言病理学 语言病理学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 脑卒中后失语严重影响了沟通和生活质量.
- 患者和护理人员对中风和失言症护理的满意度通常低于最佳水平.
- 缺乏对护理旅程和服务互动的全面理解.
研究的目的:
- 调查整个护理连续的中风后失言症护理生活经验.
- 探索护理经验的地理差异.
- 确定改善中风和失语服务设计的优先事项.
主要方法:
- 基于经验的共同设计研究,涉及患有失言症 (PWA) 和重要他人 (SOs) 的人.
- 在澳大利亚昆士兰州的21个不同医疗服务站点进行了有目的的抽样.
- 在线采访和焦点小组的定性主题分析,然后采用适应的名义小组技术.
主要成果:
- 医疗保健经验,无论是积极的还是消极的,在医院环境中最常见.
- 负面经历往往源于与卫生专业人员的沟通障碍.
- 积极的经验与提供者的人际关系品质和关系有关,PWA优先考虑可访问的信息,SO优先考虑支持.
结论:
- 确定了塑造PWA和SO经验的关键护理方面.
- 服务改进应侧重于为专业人士提供支持的沟通培训,加强区域服务的可用性和可访问的环境.
- 增加心理和同行支持,以及有意义的SO参与,对于更好的结果至关重要.
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