了解企业数据仓库以支持临床和翻译研究:影响,可持续性,需求管理和可访问性
Thomas R Campion1, Catherine K Craven2, David A Dorr3,4
1Clinical & Translational Science Center, Weill Cornell Medicine, New York, NY 10022, United States.
概括
企业研究数据仓库 (EDW4R) 提高了研究机构的能力,并使数据访问民主化. 对于EDW4R的影响,可持续性和可访问性的方法在各机构之间存在差异,需要适应性策略来实现最佳使用.
科学领域:
- 医疗信息学 医疗信息学
- 翻译科学 翻译科学
- 数据管理数据管理
背景情况:
- 医疗保健组织,包括CTSA中心,旨在利用电子健康记录 (EHR) 数据通过企业研究数据仓库 (EDW4R) 来进行研究.
- 实施和管理EDW4R的最佳策略仍未得到充分探索.
- 了解EDW4R的影响,可持续性,需求和可访问性对于最大限度地提高其实用性至关重要.
研究的目的:
- 在CTSA联盟中调查EDW4R的影响,可持续性,需求管理和可访问性.
- 确定信息学领导者在管理EDW4R时采用的有效方法.
主要方法:
- 对来自21个CTSA中心的信息学领导者进行了半结构化采访.
- 进行了面试成绩单的定向内容分析,以确定关键主题和策略.
主要成果:
- EDW4R已经成功地建立了机构研究能力,民主化了EHR数据访问,并支持学习健康系统.
- 量化EDW4R的影响是具有挑战性的,但一个中心通过链接的融资记录证明了数百万美元的影响.
- 可持续性依赖于多样化的资金,从赠款转向机构和行业支持.
- 需求管理策略包括员工扩张,多样化的治理和自助服务工具.
- 可访问性改进需要以用户为中心的设计,增强数据素养,员工扩张和团队科学增长.
结论:
- 调查人员对EDW4R的需求正在增加,需要各种方法来跟踪影响,可持续性和可访问性.
- 这项研究增强了对信息学领导者如何支持CTSA网络内外使用EDW4R的调查人员的理解.
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