二十年的患者倡导工作
Mary Baker1, Audrey Craven1, Orla Galvin1
1European Federation of Neurological Associations, Brussels, Belgium.
European journal of neurology
|May 23, 2024
概括
欧洲神经学协会联合会 (EFNA) 在过去的20年里,在神经病患者的倡导方面取得了重大进展. 他们的工作改善了生活质量,并减少了患者和社会对神经系统疾病的负担.
科学领域:
- 神经学 神经学
- 公共卫生 公共卫生
- 患者倡导 患者倡导
背景情况:
- 欧洲神经病学协会联合会 (EFNA) 联合了欧洲神经病患者倡导团体.
- 神经疾病给患者,护理人员和社会带来了重大的社会和经济负担.
研究的目的:
- 提供EFNA过去二十年的活动和成就的概述.
- 检查神经学领域患者倡导的演变.
- 突出欧洲患者声音在神经病学领域日益增长的影响.
主要方法:
- 审查EFNA的历史活动和记录的成就.
- 分析欧洲神经病学领域患者倡导的趋势.
- 评估欧洲患者声音的作用和影响.
主要成果:
- 埃弗纳拥有20年的有影响力的活动和成就的记录.
- 神经病学领域的患者倡导工作已经发生了显著的发展,欧洲组织的作用越来越大.
- 欧洲患者的声音在神经学领域的影响力明显增长.
结论:
- EFNA在推进神经病患者倡导方面发挥了重要作用.
- 在过去的二十年中,欧洲神经病学患者倡导的有效性和影响力大幅增加.
- 持续加强患者的声音对于改善神经疾病的结果至关重要.
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