在诊断之外:从患者的角度深入了解末期肝病经验
Sheza Malik1, Venkat Arutla1, Tariq Alamin1
1Internal Medicine, Rochester General Hospital, Rochester, NY, USA.
The American journal of hospice & palliative care
|May 23, 2024
概括
末期肝病 (ESLD) 护理不仅仅是医疗治疗. 患者的经验揭示了沟通,家庭支持和综合性息护理对情感和心理健康的重要性.
科学领域:
- 肝病学 肝病学是一种肝病学.
- 患者体验研究 研究研究
- 医疗保健管理的管理
背景情况:
- 末期肝病 (ESLD) 呈现出复杂的身体,情感,心理和社会挑战.
- 了解患者的体验对于改善护理至关重要.
- 检查了美国医疗保健系统的背景.
研究的目的:
- 探索美国医疗保健系统中末期肝病 (ESLD) 患者的多方面的经验.
- 确定影响患者护理和福祉的关键主题.
主要方法:
- 使用了定性,现象学方法.
- 在美国一家三级医院对15名ESLD患者进行了半结构面试.
- 数据使用MAXQDA 2023进行分析.
主要成果:
- 六个主要主题出现了:诊断交付中的沟通,家庭和社会支持,息护理理解和偏好,先进护理规划态度,医疗保健协调偏好和情感/心理影响.
- 沟通风格显著影响诊断交付.
- 家庭支持和协调护理对于ESLD患者至关重要.
结论:
- 对于ESLD患者的护理超出了医疗干预的范围.
- 明确的沟通,同情的方法,以及整合的家庭和息护理是必不可少的.
- 解决ESLD患者的整体需求可以改善结果.
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