牛津脊柱伙伴:在脊柱肉瘤服务中提供对等支持的可接受性和可行性项目
Jasmine Cammas1, Sheto Tomy2, Louise Strickland3
1Specialist Nurse Practitioner, Oxford University Hospitals NHS Foundation Trust.
概括
脊柱肉瘤患者发现同行支持令人放心,即使他们早些时候更喜欢. 这是一个试点项目.
科学领域:
- 在瘤学瘤学.
- 患者支持服务服务.
- 肉瘤研究研究 肉瘤研究
背景情况:
- 脊椎主要骨和软组织瘤是罕见的瘤,占所有癌症诊断的不到0.2%.
- 一次患者和公众参与活动强调了改善脊柱肉瘤患者患者支持途径的需要.
- 这导致启动了一项专注于患者支持的服务评估项目.
研究的目的:
- 评估同行支持倡议的可接受性和可行性.
- 评估伙伴计划对利用脊柱肉瘤服务的患者的影响.
主要方法:
- 实施了点对点支持系统,将服务用户配对.
- 参与者通过微软Teams进行介绍和连接.
- 在 Buddy 介绍之前和之后收集了定量和质量数据.
主要成果:
- 服务用户报告说,通过分配一个朋友,他们感到放心和得到更好的支持.
- 虽然参与者最喜欢在诊断时有一个朋友,但支持仍然很有价值.
- 初步数据显示,对同行支持项目的积极接待.
结论:
- 该点对点支持项目得到了脊柱肉瘤服务用户的好评.
- 早期发现令人鼓舞,表明该计划的有效性.
- 该服务正在根据积极的初步结果扩大伙伴计划.
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