顺利过渡:评估患有炎症性肠病的青少年的过渡准备
Shahzaib M Khan1, David Tuchman2, Alizeh Imran3
1Department of Pediatrics, Aga Khan University, Karachi, Pakistan.
患有炎症性肠病 (IBD) 的青少年的过渡准备性随着年龄的增长而改善. 患有IBD的老年青少年在管理他们的健康和医疗保健需求方面表现出更大的信心和知识.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 青少年健康 青少年健康
- 慢性疾病管理 慢性疾病管理
背景情况:
- 炎症性肠病 (IBD) 经常在青少年时期出现.
- 显著比例的IBD患者 (15%-25%) 在20岁之前被诊断出IBD.
- 早期发病需要有效的策略来将青少年患者转移到成人护理.
研究的目的:
- 评估被诊断患有IBD的青少年的过渡准备.
- 确定阻碍年轻IBD患者过渡过程的具体障碍.
主要方法:
- 一项涉及127名12岁至21岁IBD患者的横截面研究.
- 参与者分为三个年龄组 (12-14,14-17,17岁以上).
- 一个调查问卷评估了"负责","我的健康"和"使用医疗保健"的过渡准备,并对与年龄相关的差异进行了统计分析.
主要成果:
- 随着年龄的增长,过渡准备率显著增加,从60.7%增加到77.9% (p < 0.001).
- 患者的信心和对过渡的感知重要性也随着年龄的增长而增加 (p = 0.02).
- "使用医疗保健"的知识从52%提高到79% (p < 0.001),尽管健康状况知识在各组中仍然很高.
结论:
- 在患有炎症性肠病 (IBD) 的青少年中,过渡准备与年龄正相关.
- 年龄较大的青少年在管理自己的健康和医疗保健方面表现出更强的信心和知识.
- 携带健康信息和获得转诊等障碍需要有针对性的干预措施才能成功过渡.
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