使用共同设计方法,为长期COVID患者开发新的个性化支持:LISTEN干预
Fiona Jones1,2, Anne Domeny2,3, Jessica Fish4,5
1Population Health Research Institute, St George's University of London, London, UK.
概括
这项研究为长期Covid (LC) 患者开发了个性化的支持干预,与幸存者和医疗保健专业人员共同设计. 由此产生的结果
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与.
- 复杂的干预 复杂的干预
背景情况:
- 长期Covid (LC) 呈现出各种各样的复发缓解症状,需要个性化管理策略.
- 美国国家健康和护理卓越研究所建议长期Covid的支持自我管理.
- 现有的自我管理方法,如"桥梁自我管理",强调医疗保健专业人员的培训和共同设计的资源.
研究的目的:
- 为经历长期Covid症状的个人开发一种新的,个性化的支持干预措施.
- 利用结构化的共同设计框架,结合患者和医疗保健专业人员的经验.
- 引导开发的干预措施的复制和评估.
主要方法:
- 采用加速的基于经验的共同设计方法.
- 招募了在英格兰或威尔士自认或从长期Covid中恢复过来的成年人 (18+),以及经验丰富的医疗保健专业人员 (HCP).
- 举办了小型共同设计小组会议和大型混合会议,以优先考虑需求,制定原则,并产生干预内容和资源.
主要成果:
- 共同设计了一本书 (数字和纸质副本) 用于由训练有素的医疗人员提供的1:1支持会议.
- 优先考虑身体症状,其次是心理和社会挑战,强调非线性恢复和重新构想稳定性.
- 制定了八个核心干预原则,指导医疗保健工作者培训,语言和忠诚度评估.
结论:
- 开发了"LISTEN"干预,其中包括使用联合设计的书籍进行个性化1:1支持会议的核心原则.
- 该干预利用患者的叙述和解决方案来构建个性化的战略和计划.
- 有效性和成本效益将通过随机对照试验在复杂干预措施开发和评估框架内进行评估.
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