MMpowerment:通过开发一种干预措施,使多发性骨髓瘤患者能够参与共同决策,将个人偏好纳入数字护理途径
Mirjam Garvelink1, Atena Mahboubian2, Okke de Weerdt3
1Department of value-based healthcare, St. Antonius Hospital, Nieuwegein, the Netherlands; IQ Health, RadboudUMC, Nijmegen, the Netherlands.
概括
医疗保健专业人员 (HCP) 在多发性骨髓瘤护理中表现出对共享决策 (SDM) 的高度意愿. 开发了一个数字护理途径 (DCP) 干预措施,以克服环境挑战并改善SDM.
科学领域:
- 医疗信息学 医疗信息学
- 患者参与 患者参与
- 改善临床质量 改善临床质量
背景情况:
- 共享决策 (SDM) 对于以价值为基础的医疗保健至关重要.
- 在多发性骨髓瘤 (MM) 数字护理途径 (DCP) 中优化SDM需要了解医疗保健专业人员 (HCP) 的观点.
- 当前的临床环境对SDM的一致实施构成挑战.
研究的目的:
- 使用DCP优化MM护理途径中的SDM流程.
- 了解医疗保健人员对SDM的看法及其融入DCP的观点.
- 通过量身定制的数字解决方案,促进医疗保健人员执行SDM.
主要方法:
- 第一个阶段:基于计划行为理论和组织背景和SDM模型的医疗保健人员的采访.
- 第二阶段:与医疗保健专家进行多学科开发会议,以概念化和完善DCP干预.
- 评估涉及质量改进团队的两名患者.
主要成果:
- 医疗人员表现出对SDM的积极态度和高度意图,但临床环境带来了实际挑战.
- 开发了一种由三要素组成的DCP干预,包括患者激活,偏好可视化和决策后监测.
- 患者和医疗保健工作人员都表示愿意实施开发的基于DCP的干预措施.
结论:
- 尽管有很高的意图,但医务人员的SDM行为受到临床环境的阻碍.
- 共同设计了一种新的3元素DCP干预措施,以增强多发性髓瘤护理中的SDM.
- 该干预旨在在数字健康框架内弥合SDM意图和实践之间的差距.
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