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长期 (> 10年) 肠功能直肠形:一个回顾性单中心研究

Kai Wang¹, Chunhui Peng¹, Wenbo Pang¹

¹Department of General Surgery, Beijing Children's Hospital, National Center for Children's Health, Capital Medical University, No.56 Nanlishi st, Xicheng District, Beijing, 100045, China.

Pediatric surgery international

|May 25, 2024

概括

阳肠形 (ARM) 患者的长期肠功能在10年后通常良好. 然而,排便问题会对生活质量产生负面影响,特别是心理健康,再手术会使结果恶化.

科学领域:

儿科手术儿科手术
胃肠病学胃肠病学
泌尿器科泌尿器科泌尿器科泌尿器科

背景情况:

阳肠形 (ARM) 在儿科手术护理中提出了复杂的挑战.
了解长期功能结果对于患者的管理和生活质量至关重要.
之前的研究往往缺乏延长后续期来评估持续的结果.

研究的目的:

为了评估长期 (超过10年) 肠道功能在患有直肠形的患者.
在这个群体中确定影响肠道功能和生活质量的因素.
为了将功能结果与手术史和相关异常相关联.

主要方法:

一项回顾性研究包括ARM患者,随访时间超过10年,不包括复杂综合征.
用Rintala得分评估肠道功能,用PedsQL 4.0.0评估生活质量 (QoL).
患者被分为令人满意的 (BFS ≥17) 和不令人满意的 (BFS <17) 组进行比较分析.

主要成果:

分析了81名ARM患者 (44名男性,37名女性),平均随访时间为138个月.
整体中位数肠功能评分 (BFS) 为20,生活质量评分 (QoL) 为100,显示出正相关性 (r=0.648,P<0.001).
与不令人满意的小组 (n=12) 相比,具有令人满意的肠功能 (n=69) 的患者具有显著更好的QoL和心理社会健康得分. 重复手术,主要是针对囊复发,与较差的结果有显著的关联 (P<0.001).

结论:

在ARM患者中,长期肠道功能主要良好,观察到高的QoL得分.
排便困难显著损害了心理社会福祉.
初级瘤整形手术至关重要,避免重复手术,特别是瘤复发,是优化长期结果的关键.

关键词:

阴道直肠形阴道直肠形长期肠道功能长期肠道功能生活质量生活的质量.

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