卫生登记处推的数据元素:来自德国资助倡议的调查
Sonja Harkener1, Ekkehart Jenetzky2,3, Rüdiger Rupp4
1Faculty of Medicine, University Duisburg-Essen, IMIBE, Essen, Germany.
BMC medical informatics and decision making
|May 27, 2024
概括
一项调查确定了169个健康登记册推的数据元素,有助于为研究选择元数据. 需要进一步的国际合作,以建立一个共同的数据集,以便更广泛地使用.
科学领域:
- 医疗信息学 医疗信息学
- 注册科学 登记科学 登记科学
- 数据管理数据管理
背景情况:
- 选择元数据对于健康登记册的开发和研究至关重要.
- 互操作性和数据可重复使用性在很大程度上取决于所选择的数据元素.
- 德国6个健康登记册共享元数据,以确定共同的数据元素.
研究的目的:
- 评估一组选定的元数据子集,以便在卫生登记册中更广泛地适用.
- 识别一组核心数据元素,适合在整个注册表中普遍使用.
- 评估元数据是否适用于提高互操作性和数据可重复使用性.
主要方法:
- 注册表贡献了10%的数据元素样本进行评估.
- 使用LimeSurvey Cloud进行的一项调查收集了关于数据元素适当性的投票.
- 权衡的科恩的卡帕和肯德尔的一致系数评估了协议水平.
主要成果:
- 评估了269个数据元素的评估样本.
- 169个数据元素被认为是"或许可推"或更高.
- 建议的元素主要来自人口,教育/职业,药物和营养群体.
结论:
- 建议卫生登记处使用一组169个数据元素,以帮助选择元数据.
- 这个集合可以指导注册表的开发,并改善研究问题对齐.
- 国际共识和进一步的调查是建立一个通用的共同数据集所必需的.
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