医学复杂性的儿童的临床定义:修改后的德尔菲研究
Kyle Millar1, Celia Rodd1, Gina Rempel1
1Departments of Pediatrics.
Pediatrics
|May 28, 2024
概括
这项研究通过在四个领域的39个标准上达成共识,建立了第一个对患有医疗复杂性的儿童 (CMC) 的标准化定义. 这一定义将有助于理解CMC的流行病学和结果.
科学领域:
- 儿科医疗保健研究 儿科医疗保健研究
- 临床定义和分类 临床定义和分类
背景情况:
- 患有医疗复杂性的儿童 (CMC) 代表了患有严重慢性疾病的脆弱子组.
- 现有的概念定义缺乏对关键领域的标准化标准.
- 清晰的定义对于研究和护理改进至关重要.
研究的目的:
- 建立一个基于共识的,标准化的医疗复杂性儿童 (CMC) 定义.
- 确定诊断条件,功能限制,医疗保健利用和家庭确定的需求的具体标准.
主要方法:
- 进行了范围审查,以确定CMC定义的潜在标准.
- 使用了四次代的德尔菲程序,与81名专家合作,就标准达成共识.
- 分析和缩小标准以建立最终的标准化定义.
主要成果:
- 从132项研究中确定了55个潜在的标准,用于专家审查.
- 在48个纳入标准和1个排除标准上达成共识.
- 完成了包括39个标准的定义:1个诊断标准,2个功能标准,13个医疗保健使用标准和23个家庭需求标准.
结论:
- 本研究提出了CMC的第一个基于共识的标准化定义.
- 标准化识别CMC对于推进流行病学和结果研究至关重要.
- 一个强大的定义将促进对CMC的治疗策略和护理模式的严格研究.
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