对于智力和发育障碍的年轻人过渡到成年时进行替代决策的考虑:政策声明
Renee M Turchi1, Dennis Z Kuo2, John W Rusher3
1Department of Pediatrics, Drexel University College of Medicine & St. Christopher's Hospital for Children, Philadelphia, Pennsylvania.
Pediatrics
|May 28, 2024
概括
智力和/或发育障碍 (IDD) 的过渡年轻人需要以患者为中心的护理和早期的决策支持计划. 儿科医生在赋予IDD青年和家庭自主资源方面发挥着关键作用.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 发育障碍 发育障碍 发育障碍 发育障碍
- 医疗保健的转型 医疗保健的转型
背景情况:
- 越来越多的智力和/或发育障碍 (IDD) 的年轻人正在过渡到成年.
- 这种转变需要综合,以患者和家庭为中心的护理模式.
- 早期过渡规划对于优化健康和福祉至关重要.
研究的目的:
- 审查IDD青年的替代决策支持选项.
- 讨论与此群体决策相关的法律要求和概念.
- 引导护理团队和儿科医生支持过渡和自主.
主要方法:
- 对替代决策支持概念的审查.
- 对决策的法律框架的分析.
- 讨论儿科医生在支持过渡过程中的作用.
主要成果:
- 过渡计划应该从12-14岁开始.
- 决策支持范围从支持的决策到法定监护.
- 应优先考虑最不严格的替代方案,以维护权利和尊严.
结论:
- 护理团队必须考虑各种适合个人需求的决策支持.
- 儿科医生可以通过吸引年轻人,支持沟通,并连接到资源来促进自主性.
- 在决策过程中赋予IDD的年轻人权力,促进了他们的自主权和福祉.
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