开发和验证护理人员负担从婴儿家庭NGT护理仪器的发展和验证
Cheryl Hersh1, Mollie Warren2, Nora Horick2
1Massachusetts General Hospital for Children, Boston, MA, USA.
概括
这项研究开发并验证了一种健康状况仪器,用于照顾家庭鼻胃管 (NGT) 儿童的父母. 经过验证的工具准确地反映了与NGT管理相关的家长经验和生活质量.
科学领域:
- 儿科健康结果的结果
- 患者报告的结果衡量结果.
- 护理人员经验研究研究
背景情况:
- 照顾有复杂需求的儿童和家庭鼻胃管 (NGT) 给父母带来了独特的挑战.
- 现有的健康状况工具可能无法充分捕捉这些护理人员的具体经验.
- 需要一个经过验证的,特定条件的工具来评估父母的生活质量.
研究的目的:
- 设计和验证特定年龄和条件的健康状况仪器.
- 准确地反映父母在照顾有复杂需求的儿童时的经验,需要在家中安置NGT.
- 为了确定仪器的可靠性,有效性和临床上有意义的变化得分.
主要方法:
- 综合的定性和定量研究设计.
- 与护理人员进行结构化的采访,以生成和减少项目.
- 心理测量分析包括Cronbach的alpha可靠性和假设验证的有效性.
主要成果:
- 开发的仪器显示出高可靠性 (克朗巴赫的α=0.93).
- 该工具在区分不同父母经验和评估变化方面表现出良好的有效性.
- 确定的最小重要差异为18个点.
结论:
- 这是第一个经过验证的,针对年龄和病情的工具,用于评估家长在家中接受NGT护理的经验.
- 该工具为评估NGT对父母生活质量的影响提供了有价值的工具.
- 进一步使用该仪器可以为临床实践和对这些家庭的支持提供信息.
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