"有没有人会听?" 父母对儿童喘护理的看法:一个定性研究
Daniel Lange1, Antje Lindenmeyer2, Kate Warren3
1Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
BJGP open
|May 28, 2024
概括
患有喘的孩子的父母经常觉得没有得到支持,尤其是在诊断期间. 解决未满足的教育和情感需求对于有效的喘管理和改善儿童健康结果至关重要.
科学领域:
- 儿科健康 儿科健康
- 慢性疾病管理 慢性疾病管理
- 定性研究是指质量研究.
背景情况:
- 喘是一种常见的慢性儿童疾病,导致严重的发病率和医疗保健使用,特别是在贫困地区.
- 家长是有效的儿科喘管理的核心.
- 社会经济贫困与更高的儿童喘率和住院率有关.
研究的目的:
- 调查家长对障碍和促进儿童适当喘护理障碍的看法.
- 从护理人员的角度来看,识别儿科喘管理的未满足需求.
- 探索父母在诊断喘和持续护理方面的经验.
主要方法:
- 采用批判现实主义视角的定性研究.
- 与患有喘儿童的父母进行的半结构面试.
- 使用NVivo12软件对采访成绩单进行主题分析.
主要成果:
- 六个主要主题出现了:诊断后的生活调整,诊断中的挑战,父母和医疗保健伙伴关系,学校的作用,信息获取和社会支持.
- 父母报告说,他们感到没有得到支持和被误解,尤其是在喘诊断过程中.
- 主题强调了家长教育和情感支持的重要性.
结论:
- 父母未能满足的教育和情感需求,特别是在诊断时,是最佳喘管理的重大障碍.
- 了解这些支持缺口可以指导喘护理的改善.
- 通过父母的经验,共同制作的干预措施可以提高儿科喘的结果.
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