儿童亚托皮性皮肤炎患者和家庭负担及其在日本的治疗模式
Atsushi Otsuka1, Chaochen Wang2, Hitoe Torisu-Itakura2
1Department of Dermatology, Kindai University Faculty of Medicine, Osaka, Japan.
International journal of dermatology
|May 30, 2024
概括
儿科 atopic 皮肤炎 (AD) 在日本显著影响患者和家庭. 随着年龄的增长和疾病的严重程度都加重了这种负担,突出了早期干预的必要性.
科学领域:
- 皮肤病学 皮肤病学
- 儿科 儿科 儿科
- 生活质量研究 研究 生命质量研究
背景情况:
- 亚托邦性皮肤炎 (AD) 对儿科患者及其家属构成重大负担.
- 了解影响这种负担的因素,如年龄和疾病严重程度,对于有效管理至关重要.
研究的目的:
- 为了评估日本儿科和青少年患者的亚托皮炎 (AD) 负担.
- 评估AD对护理人员和家庭的影响.
- 为了确定阿尔茨海默病的负担是否随患者年龄而变化.
主要方法:
- 在日本对537名儿科阿尔茨海默病患者 (年龄≤17岁) 的横截面调查 (2022年7月至12月).
- 从医生和患者/护理人员报告中收集的数据.
- 使用了经过验证的工具,包括儿童皮肤病生活质量指数 (CDLQI) 和皮肤炎家庭影响 (DFI) 问卷.
主要成果:
- 患者/护理人员报告的较高负担 (CDLQI得分) 与年龄增长相关 (0.543分/年,P=0.01).
- 与轻度病例相比,严重的AD病例报告了显著更大的生活质量影响 (P<0.001).
- 护理人员负担 (DFI分数) 也随着年龄的增长而增加 (0.325分/年,P=0.01) 并与所有测量因素的疾病严重程度有关.
结论:
- 随着年龄的增长和疾病的严重程度都与儿童患者及其护理人员的AD负担增加有关.
- 建议早期和有效的治疗干预措施,以减轻阿尔茨海默病对家庭的长期影响.
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