在线白血病信息的质量,可靠性,可读性和问责制
Journal of pediatric ophthalmology and strabismus
|May 30, 2024
概括
关于白血病的在线患者教育质量中等至高,可靠. 然而,可读性对普通人来说太复杂了,平均为11年级的水平.
科学领域:
- 眼科医生 眼科 眼科
- 医疗信息学 医疗信息学
- 医学教育 医学教育
背景情况:
- 在线患者教育材料对于健康素养至关重要.
- 白皮病,或白色瞳孔,需要可访问和可理解的信息,用于早期检测和管理.
研究的目的:
- 评估有关白血病的在线患者教育材料的质量,可靠性和可读性.
- 评估机构或私人网站是否提供有关白血病的优质患者信息.
主要方法:
- 一项涉及谷歌搜索"白血病"和"白色瞳孔"的横截面研究.
- 评价前50个独特的,非同行评审的,非多媒体的网页结果.
- 使用DISCERN,HONcode和JAMA标准进行质量和可靠性的评估.
- 使用七种既定公式进行可读性分析 (例如,Flesch阅读方便性,Flesch-Kincaid等级水平).
主要成果:
- 51个网站符合纳入标准,显示质量中等至高 (DISCERN中位数4).
- 值得注意的是可变可靠性 (HONcode中位数为10),机构网站在透明度方面表现更好.
- 根据JAMA标准,这两种场地类型的可靠性和问责度都很好 (中位数为3).
- 可读性平均为11.3级,显著超过患者材料推的六年级水平.
结论:
- 在线leukocoria教育材料通常提供良好的质量和可靠性.
- 可读性仍然是一个重要的障碍,大多数内容对非专业人士来说太复杂了.
- 简化语言的改进是必要的,以提高患者对白血病的理解.
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