患有腹腔疾病的孩子的父母的生活经历:一种描述性的定性研究
Nesibe S Kutahyalioglu1, Gamze Kaş Alay2
1Department of Pediatric Nursing, Faculty of Health Sciences, Karabük University, Karabük, Turkey.
Pediatric gastroenterology, hepatology & nutrition
|May 31, 2024
概括
抚养患有乳性疾病 (CD) 的孩子对父母,尤其是母亲来说是个挑战. 这项研究探讨了土耳其父母的经验,突出了疾病管理困难,支持需求和期望.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 童年营养 儿童营养
- 家庭健康 家庭健康
背景情况:
- 全球大约有1.4%的儿童患有乳病 (CD).
- 管理CD涉及严格的无质饮食,影响家庭的情感和财务.
- 父母的经验,特别是母亲,在管理儿童CD需要进一步调查.
研究的目的:
- 探索父母抚养患有腹腔疾病的孩子的实践经验.
- 了解在土耳其背景下管理儿童CD的挑战和动机.
- 识别与儿童CD相关的家长的担忧和期望.
主要方法:
- 描述性的定性研究方法.
- 个别的半结构化基于视频的二次面试.
- 涉及19名被诊断患有腹腔疾病的儿童的父母.
主要成果:
- 父母在管理孩子的乳病时面临着重大挑战.
- 确定的主要主题包括家长的担忧,支持性护理需求和家长的期望.
- 经验包括坚持饮食,上学和社交场合的困难.
结论:
- 在诊断后立即采取多学科方法至关重要.
- 医疗保健机构应提供全面的支持,包括教育和心理,财务和社会援助.
- 解决家长的需求对于有效的儿童腹腔疾病管理至关重要.
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