人口治疗:在丹麦精准医学中,个人和国家之间的相互义务的构建
Iben M Gjødsbøl1, Jeanette Bresson Ladegaard Knox2, Lea Skovgaard1
1Centre for Medical Science and Technology Studies, University of Copenhagen, Denmark.
Social studies of science
|May 31, 2024
概括
精准医学倡议治愈国家基因组种群,塑造个人与国家之间的义务. 这项研究探讨了如何定义定义.
科学领域:
- 基因组医学是基因组医学.
- 科学和技术的社会学.
- 生物伦理学生物伦理学
背景情况:
- 精准医学依赖于大规模的基因组数据.
- 国家基因组计划引发了有关社区和国家义务的问题.
- 丹麦国家基因组中心 (DNGC) 提供了一个人口治愈的案例研究.
研究的目的:
- 研究国家基因组人口策划如何重组个人与国家关系.
- 分析基因组种群的纳入标准的谈判情况.
- 了解不同的人口治理策略如何影响社会和健康公民.
主要方法:
- 丹麦国家基因组中心 (DNGC) 的民族学实地研究.
- 对基因组人口纳入标准的咨询机构谈判的分析.
- 在社会/健康公民身份和数据团结方面利用学术奖学金.
主要成果:
- 策划了两个不同的基因组群体:一个广泛的患者基因组群体和一个专门的"种族"丹麦基因组基因组群体.
- 患者群体促进了丹麦福利国家和所有个人之间的互惠义务.
- 参考人口优先考虑国家对具有国家生物地域归属感的个体的承诺.
结论:
- 国家精准医学倡议"人口策划构建和分层政治义务.
- 人口策划可以使个人可以被理解为国家负责任的社区的一部分.
- 这个过程强调了包容性数据策划对于公平的医疗保健和公民身份的重要性.
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