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以患者为中心开发膀癌幸存者护理计划
Alexandra B Caloudas1,2,3, Trenton M Haltom4,5, Heather H Goltz6
1Michael E. DeBakey VA Medical Center, Houston VA HSR&D Center for Innovations in Quality, Effectiveness and Safety, 2002 Holcombe Blvd., Houston, TX, 77030, USA. alexandra.caloudas@bcm.edu.
概括
这项研究为美国军方退伍军人膀癌 (BC) 幸存者制定了以患者为中心的幸存者护理计划 (SCP). 该SCP包括有关复发,监视和支持资源的信息,以改善从患者到幸存者的过渡.
科学领域:
- 在瘤学瘤学.
- 癌症的生存率 癌症的生存率
- 医疗保健服务研究 医疗服务研究
背景情况:
- 膀癌 (BC) 不成比例地影响老年男性,需要长期监测.
- 美国军方退伍军人BC幸存者面临着独特的挑战,由于年龄和并发症,从病人过渡到幸存者.
- 国家医学院建议在治疗结束后为所有癌症幸存者提供幸存者护理计划 (SCP).
研究的目的:
- 为美国军方退伍军人膀癌 (BC) 幸存者制定以患者为中心的幸存者护理计划 (SCP).
- 将退伍军人的特定需求和偏好纳入SCP开发过程.
- 为了促进退伍军人BC幸存者从积极治疗到幸存者的更顺的过渡.
主要方法:
- 与退伍军人BC幸存者进行了定性访谈 (n=20) 和焦点小组 (n=2).
- 幸存者对信息和支持的偏好被收集,以告知SCP的内容.
- 快速分析用于数据解释.
主要成果:
- 幸存者强调需要有关BC复发,监测计划和长期副作用的信息.
- 参与者要求详细说明健康生活策略和寻求医疗帮助的指导.
- 建议包括支持性资源和以退伍军人为中心的信息,如BC风险因素.
结论:
- 一个量身定制的SCP被开发出来,以帮助退伍军人BC幸存者在生存中进行导航.
- 解决退伍军人人口的具体需求对于有效的幸存者支持至关重要.
- 未来的研究应该评估SCP对退伍军人的健康结果和医疗保健经验的影响.
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