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社交网络支持小组的风景,针对常见的皮肤病
Audrey Terrany1, Bianca Sanabria2,3, Bassem Rafiq4
1Rutgers New Jersey Medical School, Newark, NJ, USA.
Archives of dermatological research
|May 31, 2024
概括
皮肤病的在线支持小组非常活跃,大多数帖子每天都会出现. 像Facebook和Reddit这样的平台上的患者驱动小组促进了更多的互动,改善了对皮肤疾病患者的支持.
科学领域:
- 皮肤病学 皮肤病学
- 社交媒体分析 社交媒体分析
- 医疗信息学 医疗信息学
背景情况:
- 皮肤病严重影响患者的外表,自尊和心理健康.
- 患者越来越多地在网上寻求支持和信息,从传统的面对面小组转移.
- 社交网络平台已成为与健康相关的讨论和社区建设的关键空间.
研究的目的:
- 识别和分析针对流行皮肤病的活跃在线社交网络支持小组.
- 根据平台,参与度和内容对这些群体进行分类.
- 了解皮肤健康的在线患者社区的景观.
主要方法:
- 搜索了社交网络平台的支持小组,这些支持小组与按残疾调整寿命年 (DALYs) 计算的前四种皮肤病相关.
- 分析了36个已识别的群体,记录平台,主机,参与率和帖子内容.
- 分类组,注意患者驱动内容和发布频率的普遍性.
主要成果:
- 大多数确定的群体 (88.89%) 是以患者为导向的.
- 观察到高参与度,77.78%的群体每天发帖,22.22%的群体每周发帖.
- 与其他平台相比,Facebook和Reddit群体表现出更大的互动性和协作.
结论:
- 在线支持小组,特别是像Facebook和Reddit这样的平台上的患者驱动小组,为皮肤病患者提供了有价值的互动社区.
- 临床医生可以利用这种理解来引导患者使用有效的在线资源,并促进社区参与.
- 鼓励患者生成的内容和开放的话语对于增强在线支持皮肤健康至关重要.
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