患者对患者报告的结果措施的患者解释,以评估肠道紧急情况:性结肠炎的定性访谈
Vipul Jairath1,2, Theresa Hunter Gibble3, Richard Moses4
1Departments of Medicine, Schulich School of Medicine and Dentistry, Western University, London, Canada.
Journal of patient-reported outcomes
|May 31, 2024
概括
患者报告的性结肠炎 (UC) 肠急症的结果问卷被患者理解. 定性研究证实,这些工具准确地捕捉了患者的肠急症和有意义的变化经验.
科学领域:
- 胃肠病学 胃肠病学
- 临床心理学 临床心理学
- 患者报告的结果
背景情况:
- 肠急性是性结肠炎 (UC) 的重要症状,影响患者的生活质量.
- 患者报告结果 (PRO) 调查问卷对于评估患者在UC的肠急症经验至关重要.
- 了解患者对PRO的解释对于其准确的使用和解释至关重要.
研究的目的:
- 评估患者对特定PRO问卷的理解和解释,这些问卷用于评估UC的肠急性.
- 探索患者对肠道急迫性有意义变化的看法,以这些PROs来衡量.
主要方法:
- 对十名被诊断为中度至重度活跃UC的成年人进行了定性采访.
- 患者解释了紧急数值评分表 (紧急NRS) 的修改回忆时间.
- 面试还评估了患者对全球评估 (PGIS,PGIC) 的解释,并选择炎症肠病问卷 (IBDQ) 项目,重点关注有意义的变化.
主要成果:
- 大多数患者 (≥88.9%) 了解修改的紧急NRS召回周期 (7天或3天);60.0%的人认为7天的召回更相关.
- 患者在解释全球评估和IBDQ项目时考虑了肠急症 (≥80.0%) 或相关事故 (70.0%).
- 大多数患者认为,紧急NRS的1-3点变化是最小的有意义的改善.
结论:
- 患有UC的成年人理解并使用紧急NRS,并修改了召回时间.
- 患者将全球评估和IBDQ项目解释为包括肠急症和相关事故.
- 这些发现提供了以患者为中心的证据,支持使用这些PRO来评估UC的肠急性.
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