研究协议OKRA:准备,交付和跟踪突破坏消息对话的指导指南在儿科瘤学
Theresia Krieger1, Kerstin Dittmer2, David Reinert2
1Medical Psychology | Neuropsychology and Gender Studies & Centre for Neuropsychological Diagnostics and Intervention (CeNDI), University of Cologne and Faculty of Medicine and University Hospital Cologne, Cologne, Germany theresia.krieger@uk-koeln.de.
BMJ paediatrics open
|June 1, 2024
概括
这项研究开发了OKRA,这是一个方向指南针,用于改善儿科瘤学中的坏消息 (BBN) 对话. 它旨在提高沟通技巧,并为儿童,家庭和医疗保健专业人员在癌症诊断期间提供支持.
科学领域:
- 儿科瘤学 儿科瘤学
- 临床交流 临床沟通
- 心理社会支持 心理社会支持
背景情况:
- 突破坏消息 (BBN) 在儿科瘤学是具有挑战性的,影响儿童,家庭和瘤学家.
- 有效的沟通技巧和支持工具至关重要,但在这个领域往往缺乏.
- 德国儿科瘤学中关于BBN经验和支持需求的多视角研究很少见.
研究的目的:
- 系统地设计和实际改进一个用于儿科瘤学BBN对话的方向指南针,名为OKRA.
- 改进儿童癌症护理中艰难新闻的准备,传递和后续工作.
- 解决儿童瘤学BBN所涉及的所有利益相关者的具体支持需求.
主要方法:
- 一个QUAL-量子混合方法研究设计,有两个阶段.
- 第一个阶段:参与的Delphi小组 (采访,焦点小组,问卷) 与不同的利益相关者群体 (患者,家长,提供者,研究人员).
- 第二阶段:在临床环境中使用参与式行动研究设计和代试点OKRA指南针.
主要成果:
- 第1阶段将产生多视角的知识,并为高质量的BBN流程制定论文.
- 第二阶段将产生一个试点OKRA指南针,通过代测试和反进行优化.
- 该研究涉及经验丰富的专家,医疗保健提供者,心理社会支持提供者和研究人员.
结论:
- "OKRA指南针"旨在为儿童瘤学中BBN提供一个结构化的方法.
- 成功实施将加强与癌症儿童及其家属的沟通和支持.
- 最终完成的OKRA指南针将向德国各地的多学科团队传播.
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