为患有囊性纤维化儿童的家庭照顾者提供支持计划的开发和验证:顺序探索混合方法研究的协议
Danial Shadi1, Mahnaz Jabraeili1, Hadi Hassankhani2
1Department of Pediatric Nursing, Nursing and Midwifery faculty,Tabriz University of Medical Sciences, Tabriz, Iran (the Islamic Republic of).
BMJ open
|June 3, 2024
概括
患有囊性纤维化 (CF) 的伊朗儿童家庭需要更好的支持. 这项研究开发和验证了一项全面的支持计划,以应对他们的护理挑战和未满足的需求.
科学领域:
- 儿科肺病学 儿科肺病学
- 医疗保健服务研究 医疗服务研究
- 家庭支持计划 家庭支持计划
背景情况:
- 患有囊性纤维化 (CF) 儿童的家庭面临着相当大的日常照顾负担和知识要求.
- 伊朗患有CF儿童的家庭经历了医疗团队的不充分支持,特别是在诊断,住院和出院后.
- 缺少伊朗CF家庭的全面支持计划,需要进一步的研究和干预.
研究的目的:
- 确定和重新定义患有囊性纤维化诊断的儿童的伊朗家庭的需求.
- 制定和验证一个全面的支持计划,以适应这些家庭在伊朗面临的独特挑战.
主要方法:
- 一种混合方法的探索性顺序设计,涉及定性 (传统内容分析,范围审查) 和定量 (德尔菲方法) 阶段.
- 通过采访和范围审查收集数据,以确定关键概念,证据和研究差距.
- 基于定性发现的程序设计,然后使用Delphi方法进行验证.
主要成果:
- 这项研究将产生一个经过验证的支持计划,旨在满足伊朗家庭抚养患有CF的儿童的特定需求.
- 在伊朗背景下确定关键的支持缺口和家庭需求.
结论:
- 制定和实施量身定制的支持计划对于改善伊朗CF儿童及其家属的护理和福祉至关重要.
- 这项研究解决了CF家庭支持服务的重大缺口,为基于证据的干预措施铺平了道路.
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