开发一个多媒体患者报告结果测量低识字患者,以以人为本的设计方法
Chao Long Azad1,2, Laura K Beres3, Albert W Wu4
1The Curtis National Hand Center, MedStar Union Memorial Hospital, Baltimore, Maryland, United States of America.
PloS one
|June 5, 2024
概括
这项研究将患者报告结果测量信息系统上肢短形式 (PROMIS-UE) 改编为多媒体版本 (mPROMIS-UE),以改善不同识字水平的患者的自我管理. 新的多媒体格式解决了关键挑战,提高了结果测量可访问性.
科学领域:
- 医疗信息学 医疗信息学
- 患者报告的结果
- 人与计算机的交互
背景情况:
- 大多数患者报告结果指标 (PROM) 依赖于文本,阻碍低或有限识字的个体完成.
- 很少有PROM被设计或验证用于在临床或研究环境中跨越不同识字水平的自我管理.
研究的目的:
- 将患者报告结果测量信息系统上肢短形式 (PROMIS-UE) 调整为多媒体版本 (mPROMIS-UE).
- 为了确保mPROMIS-UE可以通过所有识字水平的手和上肢患者进行自我管理.
主要方法:
- 应用了七阶段的多媒体适应协议,包括社区咨询委员会规划,观察,采访,构想,原型和成员检查.
- 对观察和采访的专题分析确定了用户和识字人格,指导了设计挑战的开发.
- 一个多学科的团队利用这些挑战来设计和代改进mPROMIS-UE原型.
主要成果:
- 与17名参与者的采访揭示了不同的用户和识字人格,为设计提供了信息.
- 确定了四个关键的设计挑战:识字,可定制性,方便性和羞耻性.
- 为了应对这些挑战,开发了音频,动画,图标,化身,进度指标和插图响应尺度等功能,并从成员检查中获得了积极的反.
结论:
- PROMIS-UE成功被改编为mPROMIS-UE,解决了混合识字患者队列所面临的挑战.
- 这种调整表明了创建多媒体PROM的可行性,以实现更广泛的可访问性.
- 未来的研究将重点关注后期适应,可用性测试和心理测试验证,以支持混合识字人口的使用.
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