在患有帕金森病的个体中对缺食症评估和治疗的看法
Rebecca S Bartlett1, Andrew S Walters2, Rosa S Stewart3
1Communication Sciences and Disorders, Northern Arizona University, Rm 313 208 E. Pine Knoll Drive, Flagstaff, AZ, 86011, USA. rebecca.bartlett@nau.edu.
Dysphagia
|June 5, 2024
概括
患有帕金森病 (PD) 的个体经历了严重的挑战与失足症. 许多人不知道或没有接受吞治疗,强调需要更好的教育和获得管理这种情况的护理.
科学领域:
- 神经学 神经学
- 语音语言病理学 语音语言病理学
- 患者报告的结果
背景情况:
- 缺食症是帕金森病 (PD) 的常见和严重并发症,影响生活质量.
- 对于PD的消化障碍有效的管理策略至关重要,但往往未得到充分利用.
研究的目的:
- 为了探索患有食障碍的患者经验,在帕金森病中提供信息,评估和治疗.
- 为了确定PD患者的缺食症管理中的当前实践模式.
- 开发一个教育资源,解决患者关于失消症的问题.
主要方法:
- 对25名患有PD相关口腔喉乱的个体进行的采访进行了定性内容分析.
- 使用了开放式和封闭式问题以及书面问卷.
- 一个患者验证的小册子被开发成一个教育资源.
主要成果:
- 大多数参与者被医疗保健专业人员询问了吞问题;60%的参与者接受了吞评估.
- 只有20%的参与者完成了吞疗法,有些人甚至不知道它的存在.
- 几乎所有参与者都希望了解更多关于食障碍的信息,并更喜欢小册子格式.
结论:
- 在吞治疗的利用和患者对帕金森病中吞障碍的知识方面存在很大的差距.
- 加强消化障碍教育和改善吞治疗的机会是全面的PD护理的重要组成部分.
- 以患者为中心的教育材料,如小册子,是有效的传播信息,以个人与PD和食欲失调.
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