"非常困难的谈话":儿童瘤学临床医师关于晚期影响的沟通改善的挑战和机会
Kendall Carpenter1, Anna C Revette2, Madison Scavotto2,3
1Boston Combined Residency Program, Boston, Massachusetts, USA.
Pediatric blood & cancer
|June 6, 2024
概括
由于情绪和资源障碍,儿科瘤学提供者很难讨论癌症治疗的晚期影响. 他们支持一种新的沟通工具,以改善关于潜在风险的早期讨论.
科学领域:
- 儿科瘤学 儿科瘤学
- 癌症的生存率 癌症的生存率
- 医疗保健通讯 医疗保健通讯
背景情况:
- 目前关于儿童癌症治疗的沟通策略 晚期影响 让患者和家属不知情.
- 关于潜在的长期健康风险的早期和有效的沟通对于儿科癌症患者及其家属至关重要.
研究的目的:
- 探索儿科瘤学提供者的观点,以沟通癌症治疗的潜在后期影响.
- 确定挑战和促进者,以便在治疗过程的早期讨论晚期影响.
主要方法:
- 与9名儿科瘤医疗提供者进行了半结构化采访.
- 使用有目的的抽样,以确保代表不同的临床角色.
- 专题分析,采用演和归纳编码,用于分析采访数据.
主要成果:
- 所有接受采访的医疗服务提供者都表示,在早期治疗对话中讨论潜在的晚期影响会让他们感到不舒服.
- 关键障碍包括社会情感因素 (感知家庭的重要性,情感负担,提供者希望) 和资源限制 (同意表格,时间,数据可用性).
- 提供者一致支持开发一种沟通工具,以帮助早期讨论.
结论:
- 医疗服务提供者在沟通延迟影响方面面临重大挑战,原因是家庭的影响和当前的实践/资源限制.
- 显然需要一个专门的沟通工具,以促进关于儿科瘤学中晚效风险的早期讨论.
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