患有密码球菌脑膜炎的人的实践经验:一种定性研究
Neo A Legare1,2, Vanessa C Quan2, Nelesh P Govender3,4
1School of Health Systems and Public Health, Faculty of Health Sciences, University of Pretoria, Pretoria, South Africa.
Southern African journal of HIV medicine
|June 6, 2024
概括
患有艾滋病毒相关的密码球菌脑膜炎 (CM) 的人在诊断后生活质量下降和收入损失. 缺乏医疗保健和知识差距等障碍阻碍了南非有效的CM管理.
科学领域:
- 医学真菌学 医学真菌学
- 传染性疾病 传染性疾病
- 公共卫生 公共卫生
背景情况:
- 密码球菌脑膜炎 (CM) 仍然是艾滋病毒感染者的重大健康负担,即使可以获得抗逆转录病毒疗法.
- 了解被诊断患有艾滋病毒相关的CM的个体的经历对于改善预防和护理策略至关重要.
研究的目的:
- 在日常医疗保健环境中探索和描述被诊断患有艾滋病毒相关的密码球菌脑膜炎的个人的经历.
- 专注于了解患者的旅程,从诊断到治疗在南非约翰内斯堡.
主要方法:
- 定性,探索性,描述性和现象学研究设计.
- 半结构化,个人深入采访,对9名有意抽样的参与者进行了深入采访.
- 数据分析采用了穆斯塔卡斯的现象学方法.
主要成果:
- 出现了五个主要主题,详细介绍了参与者的诊断和诊断后经历.
- 诊断CM导致了重大影响,包括生活质量下降,死亡恐惧和财务损失.
- 寻求健康的行为各不相同,包括自我治疗和使用传统治疗师,公共设施往往是最后的手段;障碍包括医疗保健工作者的负面态度和缺乏CM知识.
结论:
- 与艾滋病毒相关的CM患者面临着对他们的生活产生重大负面影响,并难以及时获得高质量的医疗保健.
- 建议加强患者对CM的教育,特别是对于那些开始或重新开始抗逆转录病毒治疗的人,作为标准HIV咨询的一部分.
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