关于儿童间歇性肺病护理转变的ERS声明
Petr Pohunek1, Effrosyni Manali2, Susanne Vijverberg3,4
1Paediatric Pulmonology, Paediatric Department, 2nd Faculty of Medicine and University Hospital Motol, Prague, Czech Republic petr.pohunek@lfmotol.cuni.cz.
The European respiratory journal
|June 6, 2024
概括
将患有间歇性肺部疾病 (chILD) 的儿童转移到成人护理中至关重要,即使在缓解期. 这份欧洲呼吸学会声明回顾了当前对儿童护理过渡的做法.
科学领域:
- 儿科肺病学 儿科肺病学
- 罕见疾病 罕见疾病
- 慢性护理管理 慢性护理管理
背景情况:
- 儿童间歇性肺部疾病 (chILD) 由于肺部发育和与成人形式不同的预后,存在独特的挑战.
- 儿童可以缓解,导致长期缓解或在成年后的疾病活动最小.
- 对于所有chILD患者来说,无论疾病状态如何,从儿科到成人护理的有效过渡至关重要.
研究的目的:
- 审查当前关于儿童患者护理过渡的文献和实践.
- 确定影响过渡的儿科和成人ILD分类之间的证据差距和协调.
- 为儿童提供结构化过渡期护理计划的开发提供信息.
主要方法:
- 对慢性呼吸道疾病现有过渡护理计划的文献综述.
- 对过渡计划临床结果的证据分析.
- 检查chILD缓解数据和分类系统的影响.
主要成果:
- 发现了专门针对CHILD的过渡系统的有限的公布证据.
- 现有的其他慢性疾病的过渡模型提供了洞察力.
- 成人ILD和儿童ILD分类之间缺乏协调使过渡变得复杂.
结论:
- 从儿科到成人护理的结构化过渡过程对于CHILD患者至关重要.
- 需要进一步的研究,以制定基于证据的建议,为儿童的过渡期护理.
- 这份声明强调了当前的知识差距和对标准化过渡协议的需求.
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