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为什么要出版?为什么要出版? 一项采访研究,探讨患者创新者的科学出版的原因和经验
Marie Dahlberg1, Jamie Linnea Luckhaus2, Henna Hasson3,4
1Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Tomtebodavägen 18A, 171 77, Stockholm, Sweden. marie.dahlberg@ki.se.
Research involvement and engagement
|June 6, 2024
概括
患者创新者出版以放大患者的声音并获得认可,但面临学术障碍. 持续支持对于他们对研究的宝贵贡献至关重要.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与研究.
- 创新研究 研究 创新研究
背景情况:
- 患者驱动的创新越来越多地出现在科学文献中.
- 了解患者创新者出版经验可以改善科学社区的支持和伙伴关系.
- 这项研究探讨了患者创新者的动机和在撰写科学出版物的经验.
研究的目的:
- 探索耐心的创新者发表科学文章的原因.
- 了解患者创新者在科学出版过程中的经验.
主要方法:
- 与15位国际患者创新者进行了定性半结构面试.
- 通过范围审查和雪球采样来识别参与者.
- 使用框架方法进行数据分析.
主要成果:
- 出版的动机包括加强患者/护理人员角色,并获得创新认可.
- 积极的经验包括透明的合作,技能发展和验证的实践经验.
- 负面经验包括学术保守主义,权力不平衡以及结构/资金障碍.
结论:
- 患者创新者在科学出版方面遇到持续的障碍,尽管公众参与度增加.
- 需要努力,以更好地促进患者创新者的研究贡献.
- 支持患者创新者可以促进相关和有意义的科学研究.
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