与智力残疾人合作,改变现状:一项混合方法联合制作研究的协议,以解决宫查参与方面的不平等问题
Deborah Bateson1, Jane Ussher2, Iva Strnadová3,4
1The Daffodil Centre, University of Sydney, a joint venture with Cancer Council NSW, Sydney, NSW, Australia.
Frontiers in public health
|June 7, 2024
概括
这项研究为智障人士开发了可访问的宫查资源,旨在提高查率并减少健康不平等. 调查结果将为这些资源的全国扩大提供信息.
科学领域:
- 公共卫生 公共卫生
- 健康 公平 卫生 公平
- 关于残疾人的研究.
背景情况:
- 在智力障碍者中,宫癌查率较低,导致健康不平等.
- 需要可获得的资源和量身定制的支持,以提高这一群体的查参与率.
研究的目的:
- 为智力障碍者共同制作和评估可访问的宫查资源.
- 评估这些资源对知情决策和选采用的影响.
- 为支持这一群体的医疗保健提供者开发创伤信息培训.
主要方法:
- 对查的障碍和促进者的定性探索.
- 通过研讨会共同制作多式联运查资源和培训材料.
- 一个单臂试验评估知情决策和查吸收.
- 副研究评估支持材料对家庭/支持人员的影响以及对医疗保健提供者的培训.
主要成果:
- 主要结果是改善关于宫部查的知情决策.
- 二次结果包括查的普及,以及参与者,支持人员和提供者之间的健康素养,态度和自我有效性的变化.
- 将评估共同生产的资源的可接受性,可行性和可用性.
结论:
- 联合生产,可访问的宫查资源和培训有潜力提高查率,减少智力残疾人的健康不平等.
- 成功实施可以使这些资源免费可用于国家和国际扩展.
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