牛皮及其对患者亲属和伴侣的影响 - 一项横截面问卷研究
Katja Grossschaedl1, Wolfgang Weger1, Thomas Graier1
1Department of Dermatology and Venereology Medical University of Graz Graz Austria.
Skin health and disease
|June 7, 2024
概括
牛皮严重影响患者及其家人的生活质量. 亲属和伴侣经历了大量的疾病负担,无论性别如何,突出显示了牛皮的广泛影响.
科学领域:
- 皮肤病学 皮肤病学
- 心理社会影响
- 家庭健康 家庭健康
背景情况:
- 牛皮是一种慢性皮肤疾病,具有显著的心理社会影响.
- 牛皮对家庭成员和伴侣的疾病负担的影响尚不清楚.
研究的目的:
- 为了评估牛皮患者的生活质量.
- 评估牛皮对伴侣和亲属生活质量的影响.
主要方法:
- 一项涉及250名斑块型牛皮患者的横截面研究.
- 从奥地利的牛皮病登记处 (PsoRA) 招聘.
- 使用FamilyPso问卷来计算患者家庭影响评分 (PFIS).
主要成果:
- 在牛皮区域和严重性指数 (PASI) 和皮肤病生活质量指数 (DLQI) (r=0.512,p<0.001) 之间发现了显著的关联.
- 牛皮的严重程度 (PASI) 和患者的生活质量 (DLQI) 与亲属和伴侣 (PFIS) 的疾病负担相关.
- 近78%的亲属和伴侣报告说,他们的疾病负担较小或较大.
结论:
- 牛皮严重影响近亲和伴侣的疾病负担.
- 对家庭成员的影响取决于牛皮的严重程度 (PASI) 和患者的生活质量 (DLQI).
- 亲属和伴侣的性别没有影响患者家庭影响评分 (PFIS).
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