共同设计的实用策略:让患者参与开发面向患者的共享决策制作材料的案例,用于肺癌查
Gemmae M Fix1,2, Jenesse Kaitz1,3, Abigail N Herbst1
1Center for Healthcare Organization and Implementation Research (CHOIR), VA Bedford and VA Boston Healthcare System, Bedford/Boston, MA, USA.
Journal of patient experience
|June 10, 2024
概括
这项研究为研究人员提供了切实可行的策略,以有效地让患者参与共同设计项目. 关键建议包括有意识的团队建设,量身定制的会议格式,以及破坏等级制度以促进协作和患者专业知识.
科学领域:
- 患者和公众参与研究.
- 定性研究方法 定性研究方法
- 医疗保健服务研究 医疗服务研究
背景情况:
- 有意义的患者参与研究至关重要,但缺乏实际指导.
- 共同设计方法提供了患者参与的框架.
- 之前的研究强调了以患者为中心的研究需要可行的策略.
研究的目的:
- 识别和阐述实施患者共同设计在研究中的实际策略.
- 为旨在有效纳入患者专业知识的研究人员提供指导.
- 加强患者和研究人员之间的协作过程.
主要方法:
- 民族学案例研究设计.
- 对各种数据源的反复分析,包括观察,采访和反思.
- 包括一个由患者和研究人员组成的混合团队.
主要成果:
- 确定了患者共同设计的三个核心策略:有意识的团队建设,量身定制的会议格式和破坏传统的层次结构.
- 有效的团队组成和角色定义至关重要.
- 优化会议格式可以最大限度地提高患者的贡献和专业知识.
结论:
- 研究人员可以通过专注于团队动态,会议结构和培养协作文化,有意义地让患者参与其中.
- 当通过有效的共同设计集成时,患者的专业知识显著地告知了研究结果.
- 这项研究为成功的参与患者的研究提供了可操作的见解.
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