"等待很难":提供者对安全网NICU当前基因组护理的观点
Alissa M D'Gama1, Monica H Wojcik2, Sonia Hills3
1Division of Newborn Medicine, Department of Pediatrics, Boston Children's Hospital, Boston, MA; Division of Genetics and Genomics, Department of Pediatrics, Boston Children's Hospital, Boston, MA; Department of Pediatrics, Harvard Medical School, Boston, MA.
安全网医院的新生儿重症监护室 (NICU) 提供者认为基因组护理对婴儿至关重要. 存在成本和专业知识等实施挑战,但虚拟支持模型可能有助于弥合这一差距.
科学领域:
- 基因组医学是一种基因组医学.
- 新生儿重症监护室新生儿重症监护室
- 卫生公平性健康公平性
背景情况:
- 在NICU的边缘化人口的婴儿往往缺乏先进的基因组护理.
- 这种差异导致重症新生儿的不公平健康结果.
研究的目的:
- 从安全网医院收集新生儿和遗传学提供者的观点.
- 为VIGOR实施研究提供信息,旨在在资源不足的NICU中提供快速基因组测序.
主要方法:
- 半结构焦点小组与6个安全网医院NICU的提供者进行了讨论.
- "促进研究实施在卫生服务中的促进行动"框架指导了这项研究.
- 通过代编码和主题开发实现了主题和.
主要成果:
- 提供者认识到对婴儿和家庭进行基因测试的好处.
- 关键的障碍包括基因测试的成本,辅导的遗传学专业知识不足,以及复杂的测试选择.
- 提供者对目前在基因组护理获取方面的不平等表示担忧.
结论:
- 安全网医院的NICU提供者强调对新生儿最先进的基因组护理的重要性.
- 必须解决获得基因组护理的重大障碍.
- 维戈研究提供了一个潜在的解决方案,以克服这些实施挑战.
更多相关视频
09:34Targeted Next-generation Sequencing and Bioinformatics Pipeline to Evaluate Genetic Determinants of Constitutional Disease
Published on: April 4, 2018
14:43A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
相关概念视频
Ethical Issues
Ethical Concerns in Healthcare:
Current Trends in Nursing II
Ethical Dilemmas I
Let us explore some examples to understand the potentially complex moral decisions nurses face.
Take the case of caring for minors, particularly in areas related to reproductive...
Issues And Trends In Healthcare Delivery System
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
Genomics
Nursing Ethical Principles II
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
