心力衰竭患者对治疗结果和未满足的医疗需求的看法:定性偏好研究
Alice Vanneste1, Liese Barbier1, Ramses Missotten1
1Department of Pharmaceutical and Pharmacological Sciences, KU Leuven, Leuven, Belgium.
ESC heart failure
|June 10, 2024
概括
心力衰竭患者优先考虑生活质量和独立性,而不是生存. 他们寻求实用信息,并对副作用和治疗不确定性表示担忧.
科学领域:
- 心脏病学 心脏病学
- 患者为中心的护理
- 健康研究成果研究结果
背景情况:
- 当前心力衰竭 (HF) 的决策往往忽视了患者的观点.
- 需要来自患者的证据来增强高频率患者中心的护理.
- 了解HF患者的优先事项对于改善治疗策略至关重要.
研究的目的:
- 确定HF患者未满足的医疗需求和首选的治疗结果.
- 评估HF患者对治疗的风险耐受性.
- 探索HF患者的信息需求,不确定性和对治疗的满意度.
主要方法:
- 患者偏好的定性研究,包括文献综述和半结构面试.
- 系统的搜索策略和框架方法分析.
- 患者对预定义的疾病/治疗特征进行了排名,并提出了自发的担忧.
主要成果:
- 肝炎患者优先考虑生活质量和独立性,将呼吸短促和疲劳列为主要未满足的需求.
- 患者将独立性,缓解症状 (呼吸短促,疲劳) 和功能排在生存率以上.
- 患者希望从医生那里获得实用,口头的信息,并对治疗效果与疾病进展的不确定性表示不确定.
结论:
- 肝炎患者重视症状管理和改善生活质量,以及生存率.
- 确定患者优先级可以为临床试验终点和药物开发提供信息.
- 纳入患者的观点对于解决心力衰竭治疗中未得到满足的需求至关重要.
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