儿科慢性病中的灾难性医疗保健支出和护理人员负担 - 从低资源环境中进行混合方法研究
Soumya Reddy1, Nicole Scholes-Robertson2, John Michael Raj3
1Department of Paediatric Nephrology, St Johns Medical College Hospital, St Johns National Academy of Health Sciences, Sarjapur Road, Bangalore, 560034, India.
Pediatric nephrology (Berlin, Germany)
|June 10, 2024
概括
患有慢性病 (CKD) 的儿童的照顾者在资源较低的环境中面临着巨大的负担和财务压力. 这项研究强调,迫切需要社会支持干预措施来缓解他们的挑战.
科学领域:
- 儿科脏病学 儿科脏病学
- 全球健康 全球健康
- 护理人员支持护理人员支持
背景情况:
- 在资源较低的环境中,患有慢性病 (CKD) 的儿童的护理人员管理复杂的家庭医疗护理.
- 这些护理人员经常面临相当大的自费治疗费用,导致巨大的财务压力.
研究的目的:
- 评估在低资源环境中对患有晚期CKD的儿童的照顾者负担.
- 确定护理人员负担和灾难性医疗保健支出 (CHE) 之间的关联.
主要方法:
- 一项混合方法研究,涉及患有晚期CKD (3b-5阶段) 儿童的主要护理人员.
- 用儿科脏护理人员负担量表 (PRCBS) 来衡量护理人员负担.
- 财务负担是通过计算CHE的发病率来评估的 (自费医疗保健支出>家庭月收入的10%). 定性访谈探讨了负担的来源.
主要成果:
- 平均护理人员负担得分 (141) 比之前报告的要高.
- 灾难性医疗保健支出 (CHE) 影响了96%的护理人员,82%的护理人员自费支付.
- 较高的负担得分与功能衰竭,最近住院,无收入状态,多人家属和高医疗费用相关.
结论:
- 患有慢性病的孩子的父母经历了严重的照顾者负担和频繁的CHE.
- 持续的经济压力强调了对这些家庭的社会支持干预措施的迫切需要.
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