临床怀疑的关节痛和类风湿性关节炎:患者对疾病的看法
Sarah J H Khidir1, Pascal H P de Jong2, Annemiek Willemze3
1Department of Rheumatology, Leiden University Medical Center, Leiden, Netherlands.
Joint bone spine
|June 10, 2024
概括
临床怀疑关节痛 (CSA) 患者的疾病感知与类风湿性关节炎 (RA) 患者相似. 了解这些感知可以改善对那些有RA风险的人的护理.
科学领域:
- 类风湿病学 类风湿病学
- 心理学 心理学 心理学
- 患者体验 患者体验
背景情况:
- 临床怀疑的关节痛 (CSA) 是类风湿性关节炎 (RA) 的风险阶段.
- 患者对CSA的看法在很大程度上是未被探索的.
- 了解患者的看法对于早期干预和改善护理至关重要.
研究的目的:
- 为了绘制CSA患者的疾病感知.
- 将CSA患者的感知与早期RA患者的感知进行比较.
- 在两年时间内调查CSA患者感知的变化.
主要方法:
- 包括399名CSA患者和100名早期RA患者.
- 使用简要疾病感知问卷 (BIPQ) 评估疾病感知.
- 在基线和CSA患者的2年随访期间测量感知.
主要成果:
- 在CSA和RA患者中,BIPQ总得分是可比的 (40±11对40±10).
- 与RA患者相比,CSA患者对身体不适的担忧较小,但对治疗效果的负面期望较高.
- 在没有发展为关节炎的CSA患者中,疾病感知得到改善,但在那些进展为关节炎/RA的患者中保持稳定.
结论:
- 在CSA患者和新诊断的RA患者中,疾病的感知同样严重.
- CSA患者主要将他们的症状归因于身体疲劳和遗传.
- 解决患者的担忧和期望是改善对风险较高的患者的护理的关键.
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