普拉德-威利综合征患者的精神病医疗护理-特征,需要和障碍
Jelte Wieting1, Theresa Herrmann2, Stephanie Deest-Gaubatz1
1Department of Psychiatry, Social Psychiatry and Psychotherapy, Hanover Medical School, Hanover, Germany.
概括
在普拉德-威利综合征 (PWS) 中,精神病并发症很常见,但往往治疗不足. 许多患有PWS的人经历了行为问题并寻求精神病治疗,但成功率很低,这表明需要改善心理健康支持.
科学领域:
- 神经发育障碍 神经发育障碍
- 精神病学是一个精神病学.
- 遗传学 是一个遗传学.
背景情况:
- 普拉德-威利综合征 (PWS) 的特点是智力障碍,明显的行为表型,以及精神病并发症的高风险.
- 了解PWS患者的精神病医疗护理环境对于改善健康结果至关重要.
研究的目的:
- 检查目前对普拉德-威利综合征患者的精神病治疗情况.
- 确定寻求精神病治疗的原因和PWS患者的治疗结果.
主要方法:
- 一份结构化的在线问卷被分发给德国PWS患者的照顾者.
- 收集的数据包括人口统计,诊断,治疗参数和护理人员的经验.
主要成果:
- 在77名PWS患者中,44.2%的人至少有一次精神病并发症诊断.
- 情绪爆发和攻击性行为是寻求精神病治疗的主要原因.
- 34.9%的人没有成功寻求护理,而32.5%的人接受了精神药物治疗,主要是抗精神病药物.
结论:
- 在PWS中精神病并发症似乎没有得到充分的治疗,特别是在门诊机构.
- 医疗保健提供者的不确定性可能导致PWS患者经常使用非标签的精神药物.
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