中国和荷兰的自闭症成年人:代理报告社区整合和生活满意度
Fangyuan Liu1,2, Sander Begeer1,2, Rosa A Hoekstra3
1Vrije Universiteit Amsterdam, The Netherlands.
概括
中国和荷兰的自闭症成年人面临着重大的社区整合挑战,包括就业和独立生活. 护理人员报告说,在两国自闭症患者的生活满意度都很低,而中国成年人表达的满意度更低.
科学领域:
- 神经发育障碍 神经发育障碍
- 跨文化心理学跨文化心理学
- 社会包容性 社会包容性
背景情况:
- 尽管中国人口众多,但对中国自闭症成年人的理解有限.
- 需要评估中国自闭症成年人的社区融合和生活满意度.
- 与高收入国家 (荷兰) 进行比较,以了解支持需求.
研究的目的:
- 评估中国青少年自闭症成年人的社区融合 (就业,独立生活,社会联系).
- 为了评估中国自闭症成年人的生活满意度,照顾者报告.
- 将这些结果与荷兰的自闭症成年人具有相似特征进行比较.
主要方法:
- 一项涉及99名中国自闭症成年人和109名荷兰 (18-30岁) 的比较研究.
- 护理人员报告的关于社区融入和生活满意度的数据.
- 统计分析以比较各国之间的结果并确定预测因素.
主要成果:
- 中国和荷兰的自闭症成年人遇到社区融入困难,缺乏就业,独立生活和亲密的友.
- 护理人员报告说,两国自闭症患者的生活满意度都很低;中国成年人报告说,他们的生活满意度低于荷兰成年人.
- 国家是独立生活的重要预测因素,荷兰参与者更有可能进入护理机构.
结论:
- 具有高度支持需求的自闭症成年人在全球范围内遇到类似的整合和满意度挑战.
- 在中国影响低满意度的潜在因素包括缺乏支持和更高的护理人员压力.
- 需要进一步的研究,以了解在自闭症患者的支持系统和福祉方面的跨文化差异.
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