有哪些指南可以支持患者的伴侣补偿实践? 对现有政策和指导方针进行范围审查
Grace Fox1, Dean A Fergusson1,2,3, Ahmed Sadeknury2
1School of Epidemiology and Public Health, University of Ottawa, Ontario, Ottawa, Canada.
概括
患者合作伙伴在研究中至关重要,应该为他们的贡献提供补偿. 这次审查发现了关于补偿患者合作伙伴的充分指导,挑战了缺乏指导阻碍公平认可的观点.
科学领域:
- 在研究中患者和公众参与 (PPI)
- 医疗保健服务研究 医疗服务研究
- 研究伦理与治理研究伦理与治理
背景情况:
- 患者参与研究,也称为患者和公众参与 (PPI),需要适当承认患者合作伙伴的贡献.
- 薪酬,包括共同作者和荣誉费,是认可患者合作伙伴的一个关键方面.
- 之前的研究表明,补偿很少被报告,研究人员认为缺乏指导,造成公平PPI的障碍.
研究的目的:
- 确定和总结有关患者合作伙伴补偿的可用指导和政策文件.
- 解决对研究人员和机构在患者伴侣补偿方面缺乏指导的感知问题.
主要方法:
- 根据JBI (Joanna Briggs Institute) 的方法进行了范围审查.
- 搜索包括灰色文献 (谷歌,谷歌学者) 和Overton (政策文件数据库).
- 包含的文件提供了关于对患者合作伙伴进行研究贡献的补偿的指导或政策;数据由两个独立审查员提取和综合.
主要成果:
- 确定了65份指导或政策文件,主要来自加拿大 (57%) 和英国 (26%).
- 常见的非财务补偿包括培训机会 (40%) 和参加会议 (38%).
- 95%的文件建议提供经济补偿,费率因角色和活动而异 (例如,反的中位数为每小时19美元). 还发现了针对青年和土著人民等特定群体的指导.
结论:
- 有许多公共资源可用于指导患者伴侣补偿策略的制定.
- 这些发现与缺乏指导阻碍患者合作伙伴获得经济补偿的看法相矛盾.
- 未来的努力应专注于实施现有的补偿策略,以确保对患者合作伙伴的适当认可.
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