bodysymptoms.org的参与性设计:一个交互式的网络资源来解释多系统功能体征症状
Chloe Saunders1, Maria Gordon1, Cecilia Righini1
1Department for Functional Disorders and Psychosomatic Medicine, Aarhus University Hospital, Denmark.
Journal of psychosomatic research
|June 13, 2024
概括
这个项目创建了bodysymptoms.org,这是一个网站,提供有关功能性体征症状 (FSS) 和整合性生物心理社会解释的可靠信息. 它使持久性身体症状的个体有能力寻求更好的健康结果.
科学领域:
- 医疗信息学 医疗信息学
- 患者参与 患者参与
- 数字健康干预措施 数字健康干预措施
背景情况:
- 关于功能性体征症状 (FSS) 的可靠在线信息有限.
- 对FSS的综合性生物心理社会解释和健康建议对公众来说并不容易获得.
- 身体症状项目是为了解决这个信息缺口而启动的.
研究的目的:
- 建立一个交互式网站,介绍FSS的当前,被广泛接受的解释.
- 为了说明各种FSS解释的相互联系.
- 为那些经历了持续的身体症状的人提供可行的健康建议.
主要方法:
- 一个研究中的行动项目,利用参与式设计和患者/公众参与.
- 与多种国际利益相关者合作,包括7名参与者,他们有多系统功能症状的实践经验.
- 代的开发周期来确定对交互式解释模型的要求.
主要成果:
- 共同创建一个新的,互动的在线健康资源:bodysymptoms.org.org.
- 该网站具有交互式解释模型和综合可操作的健康建议.
- 该资源是为年轻成年人设计的,他们有持续的身体症状,由功能机制维持.
结论:
- 参与式设计,整合生活经验和多学科的观点,创造立即的共享价值.
- 该项目产生了一个可用的,开放式访问的网站 (bodysymptoms.org),用于FSS.org上的教育.
- 该网站为患者,医疗保健专业人员和寻求了解FSS的公众提供服务.
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