迷失在系统中:怀孕期间多种长期健康状况的妇女的责任和负担
Stephanie J Hanley1, Sharon McCann2, Siang Ing Lee1
1Institute of Applied Health Research, University of Birmingham, Birmingham, West Midlands, UK.
概括
在怀孕期间患有多种长期健康状况的妇女通常需要浏览复杂的护理系统,面临沟通挑战和分娩后护理的降级. 改善对这些母亲和婴儿的支持至关重要.
科学领域:
- 孕产妇健康 孕产妇健康
- 慢性疾病管理 慢性疾病管理
- 医疗保健系统研究 医疗保健系统研究
背景情况:
- 超过20%的孕妇有多种长期健康状况,增加了母亲和婴儿的风险.
- 现有的关于多种疾病怀孕的研究是有限的,特别是在患者体验和护理途径方面.
- 这项研究解决了了解患有多种慢性疾病的孕妇的护理经验的差距.
研究的目的:
- 探索怀孕妇女有多种长期健康状况的经历.
- 调查这些妇女及其医疗保健提供者所面临的护理途径和挑战.
- 确定在怀孕和产后期间支持患有多种疾病的妇女改善的领域.
主要方法:
- 半结构面试与英国各地的57名女性和51名医疗保健专业人员进行.
- 参与者包括至少怀孕28周或产后2年内的妇女,以及经验丰富的专业人员照顾这群人群.
- 用专题分析来分析收集的定性数据.
主要成果:
- 出现了五个关键主题,突出了协调团队关怀和有效沟通的需要,特别是在药物管理方面.
- 妇女经常扮演护理导航角色,将分散的医疗保健提供者联系起来.
- 经验各不相同,共同的问题包括在产后护理的感知下降和由于分散的系统而导致的信息连续性的困难.
结论:
- 患有多种长期健康状况的孕妇在协调护理方面承担着相当大的负担,经常感到不受支持和被低估.
- 调查结果将为联合制作工作坊提供信息,以制定护理建议和指导未来的干预措施.
- 改善护理系统和承认患者的专业知识对于改善母亲和婴儿的结果至关重要.
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