向消费者传达前列腺癌结果数据 简短的沟通
Tenaw Tiruye1, Kerri Beckmann2
1Cancer Epidemiology and Population Health Research Group, Allied Health and Human Performance, University of South Australia, Adelaide, Australia; School of Public Health, Debre Markos University, Debre Markos, Ethiopia.
Urologic oncology
|June 14, 2024
概括
前列腺癌结局数据被翻译成一个易于理解的成绩单. 该资源提供了关于前列腺癌患者的生存率和治疗副作用的关键信息.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者教育 患者教育
背景情况:
- 临床注册提供了关于前列腺癌患者的结果有价值的数据.
- 将复杂的医疗数据翻译成可访问的格式对于患者赋权至关重要.
- 现有的患者资源可能无法充分满足对清晰,综合结果信息的需求.
研究的目的:
- 将前列腺癌注册数据转化为一个消费者友好的资源.
- 为了提高患者对治疗结果和预后的理解.
- 为了促进患者和医疗保健提供者之间的共享决策.
主要方法:
- 来自南澳大利亚前列腺癌临床结果协作 (SA-PCCOC) 注册表 (2008-2018) 的现实数据的分析.
- 包括各种前列腺癌治疗的临床和功能结果 (手术,放射治疗,支臂治疗,激素治疗,积极监测,警等待).
- 通过咨询消费者和临床医生,包括采访和调查,开发"前列腺癌结果报告卡".
主要成果:
- 观察到前列腺癌的5年生存率为97%.
- 在5年内,17%的男性经过手术和14%的男性经过放射治疗后经历了癌症复发;在积极监测下,三分之一的男性过渡到其他治疗.
- 所有治疗类型都对性功能产生了负面影响,较高风险的疾病与更差的预后和更大的功能衰退相关.
结论:
- 面向消费者的报告卡简化了前列腺癌患者复杂的结果数据.
- 该资源改善了患者和医疗服务提供者之间的沟通,并支持共享决策.
- 解决未得到满足的心理社会和支持性护理需求,特别是心理健康和性功能,仍然至关重要.
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