开发和传播普通语言资源的实践和障碍 报告医学研究信息:一个范围审查
Avishek Pal1, Isabelle Arnet2, Bernice Simone Elger3,4
1Institute of Biomedical Ethics, University of Basel, Bernouillistrasse 28, 4056, Basel, Switzerland. Avishek.pal@unibas.ch.
The patient
|June 15, 2024
概括
简单的语言资源 (PLR) 提高了健康素养和共享决策 (SDM). 患者更喜欢可视化,可访问的PLR,而仅文本格式仍然是最常见的,突出了开发和传播实践中的差距.
科学领域:
- 卫生沟通健康沟通
- 医学研究传播 医学研究传播
- 患者赋权是患者的权力.
背景情况:
- 简单语言资源 (PLR) 旨在提高公共卫生素养和共享决策 (SDM).
- 越来越多的举措导致了PLR的增加,但质量,格式和可访问性差异很大.
- 本综述探讨了PLR开发和传播当前的实践,指导和障碍.
研究的目的:
- 确定当前的实践,指导和发展和传播医学研究PLR的障碍.
- 报告患者和公众对PLR格式和传播的偏好.
主要方法:
- 来自PubMed,EMBASE,Web of Science和临床试验注册表的文献范围审查 (2017年1月至2023年6月).
- 为定性观测进行证据映射和合成.
- 对趋势,可用性和出版商类型确定PLR的定量评估.
主要成果:
- 确定了9000多个PLR;分析包括6662.2.
- 障碍包括不清楚的指导和研究人员的不情愿;建议侧重于传播和可读性.
- 患者和公众更喜欢视觉,可访问,没有术语的格式,与纯文本PLR的流行形成鲜明对比.
结论:
- 改善PLR命名,可访问性和翻译可以赋予患者权力并支持SDM.
- 标准化PLR开发指南对于最大化影响至关重要.
- 解决首选和可用的PLR格式之间的差距对于有效的健康沟通至关重要.
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