研究与聋人接触的伦理学. 一个定性证据综合的综合
Tomasz Krawczyk1,2, Jan Piasecki1, Mateusz Wasylewski1,2
1Department of Philosophy and Bioethics, Faculty of Health Sciences, Jagiellonian University Medical College, Krakow, Poland.
Journal of deaf studies and deaf education
|June 16, 2024
概括
为聋人参与研究带来了伦理上的挑战. 确保认可,平等的伙伴关系和可访问的沟通对于道德包容和改善科学合作至关重要.
科学领域:
- 社会科学 社会科学 社会科学
- 医学伦理 医学伦理
- 关于残疾人的研究.
背景情况:
- 聋人个人在研究中的道德参与是复杂的.
- 现有的研究往往忽视了聋人参与者的观点.
- 了解这些伦理问题对于包容性研究实践至关重要.
研究的目的:
- 综合质量和混合方法的研究,以研究聋人的伦理参与.
- 从聋人个人的角度确定关键的伦理挑战和最佳实践.
- 为参与聋人社区的研究制定道德准则提供信息.
主要方法:
- 现有文献的定性证据综合.
- 系统的数据库搜索 (Scopus,PubMed) 和参考检查.
- 27项符合条件的定性和混合方法研究的专题综合.
主要成果:
- 对聋人来说,参与研究往往是一场斗争.
- 关键主题包括需要跨文化认可聋人研究.
- 伦理包容的基本要素是平等的伙伴关系和可访问的沟通.
结论:
- 在研究中道德地纳入聋人,需要对当前的实践做出重大改变.
- 调查结果可以指导制定基于证据的建议,以促进公平的研究合作.
- 这项工作支持聋人和听力研究人员之间加强科学合作.
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