与年轻人共同制作健康信息材料:反思和经验教训
Alice Faux-Nightingale1, Glenys Somayajula1, Charlotte Bradbury1
1School of Medicine, Keele University, Newcastle-under-Lyme, UK.
概括
儿童和年轻人 (CYP) 通过使用Lundy模型共同制作了长期Covid的健康信息. 这种方法确保了材料对年轻观众具有吸引力和相关性,促进了积极参与.
科学领域:
- 公众和患者参与 (PPIE) 在健康研究.
- 儿科健康沟通 儿科健康沟通
- 纵向健康研究 纵向健康研究
背景情况:
- 儿童和年轻人 (CYP) 被聘为公共顾问,共同制作针对年轻观众量身定制的关于长期Covid的健康信息材料.
- 隆迪模型提供了一个框架,以促进CYP对影响他们的事项的积极贡献,确保他们的观点是材料开发过程的核心.
研究的目的:
- 描述和批判性地反思与CYP共同制作长期Covid健康信息材料的过程.
- 评估兰迪模型在促进CYP在健康信息设计中的有意义参与方面的有效性.
- 为年轻人开发关于长期Covid的创新和引人入胜的健康信息资源.
主要方法:
- 与CYP在学校和通过视频会议进行联合制作活动,包括专门的CYP利益相关者小组和长期Covid的CYP.
- 采用基于问题的协作学习方法来鼓励CYP参与,重点关注健康信息材料的内容,格式和设计.
- 通过一系列方法和公开讨论,CYP为年轻观众共同设计了一系列长期Covid健康信息材料.
主要成果:
- 66名CYP (10-18岁) 和两名年轻成年人共同设计了规范,并对长期Covid健康信息材料的早期设计提供了反.
- 一个社交媒体活动,包括六个短视频和一本关于长期Covid的12页插图小册子,被开发和传播.
- 所有参与CYP的参与者都报告了对该项目的积极经验和满意度,以及他们参与共同制作材料的参与.
结论:
- 让CYP作为公共顾问参与,导致开发了关于长期Covid的创新和引人入胜的健康信息材料.
- 建立关系和创造一个安全的环境 (空间),CYP感到舒适地分享他们的观点 (声音) 和被听到 (观众) 对于成功的联合制作至关重要.
- 与外部团体合作,并放大像CYP这样"听不到"的人群的声音,增强了PPIE在健康研究中的意义.
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