在患有多发性硬化症的退伍军人中对疲劳管理的观点
Lindsey M Knowles1, Bishan Yang2, Felicia Mata-Greve2
1Department of Rehabilitation Medicine, University of Washington School of Medicine, Box 359612, 325 9th Ave, Seattle, WA 98104, United States; Multiple Sclerosis Center of Excellence - West, Veterans Administration Puget Sound, Seattle Division, United States.
Multiple sclerosis and related disorders
|June 16, 2024
概括
患有多发性硬化症 (MS) 的退伍军人将疲劳描述为复杂且影响日常生活. 他们更喜欢灵活的,非药物治疗方法,如远程医疗认知行为疗法 (CBT),用于管理MS疲劳.
科学领域:
- 神经学 神经学
- 康复医学 康复医学 康复医学
- 精神病学是一个精神病学.
背景情况:
- 慢性疲劳是多发性硬化症 (MS) 的普遍和致残症状.
- 建议进行多学科康复,但对于MS相关的疲劳,往往无法获得.
- 远程医疗认知行为疗法 (CBT) 对平民的MS疲劳有前途,但未在退伍军人中进行研究.
研究的目的:
- 探索多发性硬化病退伍军人如何描述他们的疲劳.
- 了解退伍军人的当前疲劳管理策略.
- 评估退伍军人对MS相关疲劳的远程医疗CBT的看法.
主要方法:
- 与24名患有MS的退伍军人进行半结构化采访和调查.
- 使用结合的演和归纳方法进行主题分析.
- 调查包括人口统计,疲劳,心理社会功能,抑郁和疼痛措施.
主要成果:
- 经历多发性硬化症的疲劳是身体和精神能量缺陷的复杂相互作用,影响日常活动,情绪和认知.
- 退伍军人采用试错策略,包括能量管理,放松,运动和适应性思维,药物的有效性可变.
- 退伍军人对远程医疗CBT表达了热情,强调需要灵活提供,根据个人需求量身定制.
结论:
- 退伍军人对MS疲劳和管理策略的经验与现有的民用研究一致.
- 退伍军人对灵活,非药物干预的偏好可以指导对这一群体进行远程医疗CBT的调整.
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